Irish Lupus Support Group on-line

The main aims of this organisation are as follows:

Act as a source of information on lupus and auto-immune disorders and treatment as well as lifestyle and social issues faced by pituitary patients and their families.
Provide mutual support for patients and their families and carers.
Increase awareness to the medical profession and the public about lupus and auto-immune disorders.
Work to understand and represent the experiences and views of patients in order to improve services and policies to help meet their needs.
To provide as far as is possible up to date information on lupus and auto-immune disorders.
To support and advise carers and families of patients.
To provide these services free of charge to its members.
To assist where possible further studies into these conditions.
To ensure that any amounts of revenue in excess of 100 euro that is spent must first be passed by the members through on-line polls
To ensure that the members are involved in any decision making processes (apart from obvious trivial decisions) through on-line polls.
In order to comply with Irish law, for this organisation to become an entity, at least three people must cover the posts of Chairperson, secretary and treasurer. These positions will be filled on a voluntary basis and revenue will not be spent on salaries.
To use this organisation to lobby corporate bodies where appropriate to increase the quality of patient's lives.

Any changes to the above must first be passed by a majority of voters using on-line polls.